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advice sought: patient records in manuscript collections
Dear STAMAsters (Apologies for cross-postings)
>Date: Mon, 10 Feb 1997 16:01:51 -0500 (EST)
>Reply-To: sthc-l@library.ucla.edu
>Sender: owner-sthc-l@library.ucla.edu
>From: RUSSELL A JOHNSON <rjohnson@library.ucla.edu>
>To: sthc-l@library.ucla.edu
>Subject: advice sought: patient records in manuscript collections
>X-Sender: rjohnson@library.ucla.edu
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>
>I am preparing a presentation to our special collections advisory
>council and campus legal counsel, which will then refine our policies
>and procedures for access to and use of patient records in our
>manuscript collections. I would like to solicit advice and other
>information on practical, legal, and ethical considerations that are
>involved when an archival/manuscripts repository has collections of
>personal papers which include patient medical and psychological
>records, such as:
>
> - unsolicited exploratory inquiries or "cold calls" from people
> with problems who saw the doctor in a news report or journal
> article and are looking for advice or referrals
> - individual case histories / personal case files
> - notes, tapes, and transcripts of interview or therapy
> sessions
> - correspondence with patients, their families, patient
> advocates, etc.
> - referrals to or from other doctors
> - case conference and grand rounds presentations
> - test results (e.g., psychological test batteries) on large
> numbers of identifiable individuals.
>
>If your repository has dealt with this issue and created
>acquisition, processing, access and use guidelines (including
>restriction statements, statements of understanding that researchers
>sign, etc.), I would appreciate receiving a copy. If you created a
>report which outlines why and how your institution arrived at its
>policies and procedures in this matter, that would also be most
>helpful.
>
>On a related point -- when was this issue last presented as the focus
>of a Society of American Archivists session? Would it be timely to
>discuss this at the Roundtable meeting this fall, and then work up a
>session proposal (co-sponsored by the Privacy and Confidentiality
>Roundtable?) for the 1998 meeting? (I would be interested in
>spearheading or joining in such a session, if there is interest and a
>perceived need.)
>
>Thanks in advance for your help -- please consider posting some replies
>to the List, too (until some subscribers say "enough, already!").
>
>
>Russell
>
>________________________________________
>
>Russell A. Johnson (310) 206-2753
>Archivist, Science Collections
>Department of Special Collections
>University Research Library, UCLA
>Box 951575 Los Angeles CA 90095-1575
>
>rjohnson@library.ucla.edu
>
>
>
>
**********************************************
* Gavan McCarthy - Director
* Australian Science Archives Project
* University of Melbourne
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* ------->Recovering Science and Technology in Australia
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